Contact — Beta Spectrin Foundation

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Medical & Scientific Advisory Board

Patient Resources

Patient Next Steps

Medical & Scientific Advisory Board

Patient Resources

Patient Next Steps

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General Inquiries and Partnerships: sptbn1foracure@gmail.com

The Beta Spectrin Foundation is a 501(c)(3) non-profit corporation registered as Beta-Spectrin 1 SPTBN1 Foundation, Inc. and headquartered in the state of Connecticut in the United States, EIN: 92-0518592.

©2023 All content and works posted on this website are owned and copyrighted by The Beta Spectrin Foundation.

Disclaimer: The information provided on this website is to inform and help parents cope with the sudden, unexpected change in their life due to their diagnosis. The information contained on this site is not intended to replace information you have received from doctors or other health professionals. We are not doctors, we are parents of children diagnosed with SPTBN1. Images cannot be used without express written consent.

Beta Spectrin Foundation

Registered in:
Connecticut, United States

Contact Us:
sptbn1foracure@gmail.com